What is Cohen Syndrome?
Cohen Syndrome is a rare genetic disorder caused by mutations in the VPS13B gene. Globally, fewer than 1,000 cases have been reported. While there are core features, the clinical spectrum of severity is very broad and those affected have a wide-range of abilities and medical challenges.
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Cohen Cousins
The Cohen Syndrome Research Foundation has brought these kids together. They advocate for research, education and support for Danny and all of his Cohen’s Syndrome Cousins. There are less than 1,000 children and adults worldwide who have this rare syndrome. We are raising money this year for this non-profit and The Danny Boy Foundation, Inc.
